{"id":9669,"date":"2018-06-16T12:07:10","date_gmt":"2018-06-16T16:07:10","guid":{"rendered":"https:\/\/vivredignite.org\/?p=9669"},"modified":"2019-02-11T12:12:08","modified_gmt":"2019-02-11T17:12:08","slug":"our-right-to-quality-palliative-care","status":"publish","type":"post","link":"https:\/\/vivredignite.org\/en\/our-right-to-quality-palliative-care\/","title":{"rendered":"Our right to quality palliative care"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p>The <em>Act Respecting End-of-Life Care<\/em> was sold to us as \"<a href=\"http:\/\/www.assnat.qc.ca\/fr\/actualites-salle-presse\/conferences-points-presse\/ConferencePointPresse-26189.html\">first and foremost, a law of access to quality palliative care throughout the territory, at the patient's choice<\/a>.\u201d When it was adopted \u2013 not so long ago \u2013 its promoters insisted that it only legalized \"medical aid in dying\" (euthanasia) as an \"<a href=\"http:\/\/www.lapresse.ca\/actualites\/politique\/politique-quebecoise\/201301\/19\/01-4612915-101-questions-avec-veronique-hivon.php\">exceptional measure for exceptional cases<\/a>.\"<\/p>\n<p>However it\u00a0is\u00a0now\u00a0obvious that, almost four years since the day of <a href=\"http:\/\/www.assnat.qc.ca\/fr\/travaux-parlementaires\/assemblee-nationale\/41-1\/journal-debats\/20140605\/112387.html\">its adoption<\/a> and close to three years after its <a href=\"http:\/\/legisquebec.gouv.qc.ca\/en\/ShowDoc\/cs\/s-32.0001\">coming into effect<\/a>, the public authorities have essentially concentrated their efforts on this famous \"exceptional measure\", giving the impression that the act of killing people\u00a0 to\u00a0 end their suffering \u2013 <a href=\"https:\/\/www.wma.net\/policies-post\/wma-resolution-on-euthanasia\/\">still very controversial<\/a> \u2013 was a <em>cool<\/em> and <em>trendy<\/em> way of ending one\u2019s life.<\/p>\n<p>Recently, faced with this regrettable reality, several personalities in the health\u00a0care community have publicly denounced the fact that, ultimately, the <em>Act Respecting End-of-Life Care<\/em> does not fulfill its main promise: to guarantee to all of the approximately 60,000 Quebecers who die each year the right to receive quality palliative care if it is needed.<\/p>\n<p>Thus, after the <a href=\"https:\/\/www.lesoleil.com\/actualite\/sante\/acces-aux-soins-palliatifs-dans-les-chsld-inquietant-manque-de-couverture-medicale-e07482cde96f0ad5bb502811132a2796\">heartfelt appeal of Quebec's two major palliative care associations<\/a> denouncing the lack of efforts and resources to make quality palliative care accessible in all Quebec nursing homes (CHSLDs), or that of physicians who claimed that <a href=\"https:\/\/montreal.ctvnews.ca\/doctors-fear-quebecers-forced-to-choose-between-assisted-death-or-palliative-care-1.3971163\">some patients are turning to physician-assisted suicide for lack of palliative care options<\/a>, the <em>Coll\u00e8ge des m\u00e9decins du Qu\u00e9bec<\/em> (CMQ) has also expressed its concerns by highlighting the disorderly application of the <em>Act Respecting End-of-Life Care<\/em>.<\/p>\n<p>In a letter sent to Dr. Ga\u00e9tan Barrette, the current Minister of Health, the <em>Coll\u00e8ge des m\u00e9decins<\/em> mentions that, in some cases, \u201cpatients, unable to benefit from [clearly identified palliative care], may have had no choice but to ask for [euthanasia] to end their days...\".<\/p>\n<p>Even worse, the College reports a disturbing fact that suggests that the <em>exceptional measure<\/em> may be imposing itself as a supreme: \u201cThe College has been told that patients seeking medical aid in dying were becoming the priority for access to available resources (...) to the detriment of other end-of-life patients with similar needs.\u201d<\/p>\n<p>In other words, those who choose euthanasia are entitled to the best support available in the last moments of their lives, while many others \u2013 the vast majority \u2013 do not receive the care promised to them in the law. Is that really the ideal of justice that we pursue as a society? Or is it for fear of making tomorrow\u2019s headlines that the medical personnel are rushing to satisfy patients who choose euthanasia? Are they trying to avoid being publicly singled out for not immediately providing the act that has been promoted as the new way to die 2.0?<\/p>\n<p>Meanwhile, instead of strengthening palliative care, the current situation threatens its very sustainability, as the College of Physicians also observes, reporting that \u201cdoctors are leaving and not being replaced in many palliative care settings, compromising access to such care.\u201d<\/p>\n<p>In conclusion, it is time to step back and reflect on the entirety of the commitments made in the <em>Act Respecting End-of-Life Care<\/em>. It is also time to listen carefully to what palliative care professionals have to propose as ways to make our end of life comfortable: after all, they are the experts. And it is time to claim the right that has been legally granted to us as citizens to have access to such care. Any delay in that respect abandons citizens to death without the support of the comfort care they were promised.<\/p>\n<p>On the eve of the provincial elections in October, now is the time for the Quebec population to mobilize and demand that the future government finally listen to the vast majority of the electorate who wish to <a href=\"https:\/\/vivredignite.org\/en\/declaration\/\">live with dignity<\/a> until the end of their lives with the help of quality palliative care.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp;<br \/>\nThe Act Respecting End-of-Life Care was sold to us as &#8220;first and foremost, a law of access to quality palliative care throughout the territory, at the patient&#8217;s choice.\u201d When &#8230;<\/p>\n","protected":false},"author":26,"featured_media":9670,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[290],"tags":[],"class_list":["post-9669","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"_links":{"self":[{"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/posts\/9669","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/users\/26"}],"replies":[{"embeddable":true,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/comments?post=9669"}],"version-history":[{"count":2,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/posts\/9669\/revisions"}],"predecessor-version":[{"id":9672,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/posts\/9669\/revisions\/9672"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/media\/9670"}],"wp:attachment":[{"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/media?parent=9669"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/categories?post=9669"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/vivredignite.org\/en\/wp-json\/wp\/v2\/tags?post=9669"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}